Back on October 2nd. this year I created a Go Fund Me page. You can find it here.
My goal was (and still is) to raise $10,000.00 to help pay for caregivers so my dad and step-mom, Jinny, could stay at home until after the holidays. I thought that if all my facebook contacts, twitter followers, and family and friends donated just a dollar each, I could come really close to my goal.
And then my computer crashed.
Just before that I had written a post titled, Dementia and in that post I had told you about my dad being in the hospital and that they had to tie him down. Must have been a horrible experience for him. I took pics with my cell phone of his hand over a week later and want to share them with you.
My dad passed away last night at 10:09 pm. He went peacefully in his sleep. He was at home under the watchful eye of loving caregivers. Caregivers who have become part of our family. But now, I need to reach that goal more than ever on my gofundme page. Jinny still needs 24 hour care and with dad’s passing she will lose half of his social security, the Veteran’s pension amount will be reduced, and we will lose the Veteran’s homemaker program. It is where the Veteran’s contract with a caregiver agency and send a caregiver 16 hours a week at no cost to us.
I don’t like asking for help for me, but this is important to me. I know we all have our own problems that we face every day and money is tight for each and every one of us. Even if you could just share my blog and my gofundme page, it would be a great help.
My dad’s best friend and neighbor told me that someone had told him to always count your blessings. I agree.
Even though Thanksgiving isn’t until tomorrow I want to share with you a few things I am thankful for today.
I am thankful that I got to spend the time that I did with my dad. I am thankful for the many phone conversations we shared, because those will be what I miss the most and I am thankful that he is at peace now.
I wish you all a Thanksgiving filled with much love, many hugs, and blessings that you will treasure forever.
Much love and hugs from me, Karen.
Dad Called Today
That’s the title of the memoir I am writing. “Dad Called Today” it started out with me wanting to share the daily phone calls between dad and myself. Phone calls that made me smile and laugh. Some that made me sigh or cry. While others had me banging my head on the table. But somehow, somewhere along the way, dad developed dementia. And more than likely, Lewy Body Dementia.
(The other day I heard on the news that Robin William’s widow wrote an essay for a neurology journal about Lewy Body Disease and you can read it here, http://www.neurology.org/content/87/13/1308.full )
Dementia is a debilitating disease of the mind. Most people associate it with forgetfulness, but there is way more to it than that. Dementia patients might get confused and have a hard time focusing. They get agitated and angry. They might yell, scream, cuss, and some get violent. They can have hallucinations. Many nights they act out bad dreams, hitting, kicking, moaning and yelling during sleep. But underneath all of that, they have their own personalities; Years in the making. So, dealing with a dementia patient can be hard. There are medications that can be prescribed, but even then they can still have outbursts.
They need help. But, putting them in a convalescent home isn’t always the right answer.
Case in point: Thursday morning, Dad woke up screaming that he couldn’t breathe. Dad also has congestive heart failure. The caregiver gave him a breathing treatment, called me, and then called 9-1-1. The paramedics were told that he had dementia and were given his medication list. When I arrived at the hospital, I told them about his dementia. About an hour after my sister arrived the doctor decided to admit dad. I had Joyce put a mark next to the three medications that dad takes for his dementia and told her to make sure the nurses made a copy of the list and that they needed to be aware of his condition. Ten thirty that evening I got a call saying that dad wanted to talk to his wife so I called the caregiver who was with Jinny and gave her the message. Due to Jinny’s limited speech and dad’s hard of hearing, the phone call did not go well. Dad started yelling and cussing and he threw the phone at the nurse. Jinny’s caregiver called me and the hospital called Joyce. They told Joyce that they were calling security. Joyce asked them, wasn’t dad given his meds? And the nurse replied, “What meds?”
Dad is 92 years old. He was weak and couldn’t even get out of bed and yet they put him in restraints like a common criminal! And the nurse he had didn’t even know that he has dementia and on top of everything else she didn’t know how to deal with the situation. This is a hospital where 80% of their patients are elderly. Doctors and nurses are supposed to be professional people and yet…There’s more, much more for me to tell, but it will have to wait for another day. I need to get ready to go visit dad.
Till then; HUGS!
Last month I had problems with my computer. UGH! So I picked up flash drives and began the process of pulling off the impossible task of, “The great save.”
You know how it goes, “Oh no! Do I have enough room on this flash drive? No? Darn.”
So you put these files here. Organize those files there and you get, “Are you sure you want to save this file without its properties?”
“What? Wait! What file?” And then you get the same thing for the next 151 files. “Yes? No? What do I do?”
It’s frustrating. Most of those notifications have to do with pictures. Book covers. Photographs you’ve purchased to use on book covers. Photos that my son had painstakingly cropped to use in creating some of my book covers. UGH!
On the bright side, I have had these problems for quite some time and had started the process of saving everything to DVDs about six months ago. Not sure how much I actually got saved but…
Then I closed my eyes and crossed my fingers and let my son reset my laptop back to factory settings. Kinda cool. It’s like getting a new computer. The downside is trying to figure out where everything is on the flash drives. (I did make sure to put all of my writing projects on their own flash drive and using red puffy paint; I put a heart on it.)
But I am still having glitches along the way, and my son says the next step is nuking it. So we will see.
Okay, Now for updates. I am still working on getting the outside of my house painted. I am finally making some progress. As long as the procrastination bug doesn’t bite me. (I’ve been working on it for over a year now. Haha.)
I have also been working on my short story collection, “Wisps of Words.” Editing. Rewriting. Adding new stories and I have taken out three stories that just don’t fit the theme. The stories are more about losing the ones we love and how we deal with the loss and the three stories I took out are about finding love. I will hold onto them and eventually put them into a different collection.
I have also been working on my memoir, “Dad Called Today.” When I first started, “Dad Called Today” it was to be about the everyday phone calls that my Dad and I shared. Calls that made me smile and LOL. Calls that made me sigh and sometimes want to cry. And then there are the calls that make me want to bang my head on the table, throw up my hands and say, “Huh?” But somehow, somewhere along the way my Dad developed dementia, and the book has turned into so much more. I still hope to make people smile when they read it, and maybe they’ll shed a few tears, but overall I hope it sheds some light on dementia and will help people understand. It isn’t a self-help book. It’s not a book on advice. Heck, I’m muddling through it just like everyone else who has dealt with it or is dealing with it. Everyone is different, and there are no right and wrong answers.
I’ve also been reading and will be putting up some reviews for Eden Baylee, Chris Ward, and Robert Pruneda, over the next week or two.
Okay, so those are my updates. Stay tuned for more! Till then; HUGS!
It’s my anniversary here on WordPress! I can’t believe it’s been 5 years! My how time flies.
This is the notification I received.
Yep, That’s what I said. 🙂 Just some shameless promotion for my weekly planner, “Do Something Nice”
Amazon has just gone crazy! The price keeps dropping! Get yours today for just $1.63. It’s a paperback weekly planner! Makes a great gift! 132 pages of inspiration to “Do Something Nice” Keep track of your daily plans. Jot down your hopes, dreams, and goals.
And it’s got one, yes one, 5 star review. 🙂
Top Customer Reviews
By eden on April 7, 2016
Author Karen Einsel has created a simple formula to allow us to acknowledge others. It’s a wonderful book to inspire us, to keep us connected to what is important — our humanity. Makes a wonderful gift item too.
Spring is here! I like Spring even though here in southern California our weather seems to skip Spring. We go from rain and overnight lows in the 30’s and 40’s to what feels like summer with highs in the 80’s and 90’s.
I think everyone has a reason for liking Spring. There’s baby birds chirping in their nests. Flowers blooming. Cocoons open, revealing beautiful butterflies. That first crocus popping up through the snow. And a lot of people cheer when the snow melts. 🙂 (I’d cheer if we got snow.) It’s that time of year when you relish opening the doors and windows to air out the wintertime blues and let in the fresh scent of honeysuckle and orange blossoms.
And of course, there are things people dread about Spring. Dogs and cats shedding their winter coat. And for us fashion conscious folks we all know that we only have so many weeks left to look great in our new string bikini. 🙂 And let’s not forget hayfever season. Achoooo!!!!
But, Spring has a way of renewing everything! Everyone says that New Years gives us a new beginning, but I think it’s Spring that really gives us a fresh start.
My favorite part about Spring is when I go out into the backyard and see the sunflowers beginning to sprout up. They renew themselves every year without any help from me. My brother tossed the seeds out for the birds probably about twenty years ago and the sunflowers have come up every year except one. That was 2014 and it prompted me to write a short story, “A Sunflower for Bruce” That will be included in my short story collection titled, “Wisps of Words”
I’m not sure exactly when it will be out. Hopefully before the end of Spring. But…
Cover is not finished yet either, but…Here’s the front…
And here’s the back…
Okay, now that you’ve listened to my rambling… I guess I should get to the point of this blog post!
“Show me your cover” has been quite popular on my blog and I’m thinking, “Hey! It’s time for a little self promotion!” I’ve shared mine, now it’s your turn.
So, “Spring It On” (me). (Little play with words there, get it? 🙂 )
This year we are going to do it just a little bit differently.
Okay, here’s all you need to do.
- Tell me in a few sentences what your favorite part of Spring is.
- Send me a jpeg of the cover of the book you want to promote
- Include one link. It can be any link you want to share. Facebook, Twitter, or where we can find your book or blog. But just one!
- First come, first served.
That’s it! Simple! I will publish one a day, every day in March.
So if you want to share your latest book, a book you are having on sale, or a free book, Or maybe one that will be coming out soon, “Spring it On!” And send me an email with your post to firstname.lastname@example.org
I look forward to hearing from you. HUGS till then!